Here we go!

I have friends and family who have asked for updates through this journey ahead of me and some MS friends who would like to have a daily journal so they have an idea of what to expect when it is their turn. I didn't feel like Facebook was where I wanted to post daily. I decided if I use my blog (last used over three years ago), it would be optional. Haha! No one is forced to read the tedious, boring details but it will be here for those that have this ahead of them. Of course, everyone's experience with Lemtrada will be different (I am talking like the FDA now). 

I remember many years ago saying that I felt like there might be a cure for MS in my lifetime, but it would certainly be too late for me. Then a few years ago, I heard about a drug in trials that looked really promising - still a long way off. Then a couple of years ago, this "really promising" drug was really going to happen. Then researchers ran into roadblocks the U.S. Finally, in November 2014, Lemtrada was approved and I was put on a waiting list. This is not a cure for MS, but the results of the clinical trials blow my mind. In the majority of patients it stops the MS in it's tracks. Many people even have an improvement in MS syptoms they are experiencing daily. There is a chance I can not only stop getting worse, but I can actually get better. Several months ago, I came off the waiting list and into the cue - February 1st through 5th. Today I found out that they can get me in Monday, January 25th!

Lemtrada rapidly depletes the immune system cells (T and B cells) that damage nerves in the Central Nervous System. Once those cells are destroyed, the attack on the nerves can potentially be halted. A new group of T and B cells will eventually be produced by the body and hopefully, the new immune system will behave differently. I will be getting rid of this immune system that has been attacking me for 17 years. As with any drugs, there are potential side effects, but none I plan on having. This could wipe me out for awhile and I will have to be super careful around people due to my tiny little newborn immune system that is growing. You know how I like pictures in my mind. I like that picture of my little growing immune system better than the picture of my defenses being annihilated. 

I will start taking 4 medications Saturday in preparation for Monday. I will take one antiviral for two months. I will also have IV steroids along with the Lemtrada infusions. I don't have a great relationship with steroids. I will be in Cullman each morning at 7:30. Doug will put me in a little red wagon and wheel me in because I will probably be asleep. I will be there for 7 hours. It is about an hour and 15 minutes to my doctor's infusion center from Muscle Shoals. 

I have no idea exactly what is ahead of me, but God does. He has been working on it for quite awhile. I may not be in that percentage that respond well to the medication, but that won't be a surprise for Him either. My journey with MS has been crazy, but He has always been the constant in my life. I have seen Him use MS in my life in such a huge way. It made me dependent on Him. I learned that I literally can't get out of the bed in the morning unless He does it. By the way, neither can you. I have been traveling and speaking to groups of people who have MS for 13 years. I have met hundreds of people that I never would have met - not just people effected by MS, but taxi drivers, pharmaceutical reps, and the poor people who are stuck sitting beside me on a plane. One of my favorite "God plane rides" was a young man in an Air Force uniform (he looked about 15). I talked to him about God and he said he was a Christian. I thought I was sitting beside him because he was ready to hear about Jesus, but he already knew about Him. He asked why I had been in Pensacola. I told him I had spoken to a group of people with MS. His eyes got really big and he said, "My mom has MS and I have been so worried about leaving her!" God did it again! So even if this medicine has no effect on me, I know God has something planned for His glory. 

I have been excited about getting started but I have been tempted to be anxious and to dread it, but I just remembered what God taught me about dread. When I dread an event or a task ahead, one of two things will happen. 1. I stress out about it and it is not as bad as my imagination thought it would be. So I went though it anyway in my mind or 2. I stress out about it and it IS a difficult situation. Then I have gone through it twice by dreading it. 

Here we go! "I know the Lord is always with me. I will not be shaken, for He is right beside me."

Missy